Rare Disease Social Media Consulting
Strategic Social Media Partnership for Rare Disease & Biotech Teams
Built for teams with big responsibility – and not enough backup.
You’re responsible for telling an important story.
You’re navigating compliance, internal approvals, agencies, leadership expectations – and still expected to “make social work.”
Genuine Social is a healthcare social media consultancy designed for small, stretched rare disease and biotech teams who need expert support without adding headcount.
We don’t operate like an agency.
We work with your team – helping you move faster, smarter, and more confidently in regulated environments.
If This Sounds Familiar, You’re in the Right Place
You might be:
- A brand or marketing lead wearing six hats, with social as just one of them
- Responsible for patient storytelling that feels meaningful and safe
- Working with agencies, but still owning strategy, approvals, and outcomes
- Watching social stall because no one is fully owning the gray areas
- Looking for clarity and momentum – but unable to achieve it
If this hits close to home, you’re exactly who we built Genuine Social for.
What We Do (and Why it Works)
Genuine Social partners with rare disease and biotech teams to bring structure, confidence, and forward motion to social media – especially where creativity, compliance, and limited resources collide.
We help teams:
- Create patient content that feels human – not clinical or risky
- Move faster without adding headcount
- Align agencies, stakeholders, and leadership around a clear social point of view
- Translate strong ideas into approvable, scalable programs
- Reduce rework, delays, and second-guessing inside MLR
Think of us as your strategic social lead in the room – without the cost or commitment of a full-time hire. The result? Social that moves forward instead of stalling. Patient stories that resonate without risk. And you finally have the breathing room to lead strategically instead of reactively.
How We Work
You need a partner and teammate who understands your constraints and helps you navigate them.
Our approach is intentionally hybrid:
- Strategic guidance paired with hands-on collaboration
- Embedded thinking without agency bloat
- Senior-level expertise that’s directly accessible
- Flexible engagement levels designed to meet you where you are
We work alongside your internal team and external agencies – reviewing work, shaping direction, pressure-testing ideas, and helping move things forward instead of getting stuck.
Built for Regulated Reality
Healthcare and biotech social media doesn’t exist in a vacuum. Neither do we.
We understand:
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- MLR timelines and approval friction
- ISI considerations in short-form and social-first content
- Agency handoffs that don’t always translate cleanly
- The constant tension between storytelling and safety
Our role is to bridge the gap between what’s possible and what’s approvable – so patient content doesn’t lose its humanity or die in drafts.
Engagement Options
We offer three partnership tiers – from strategic oversight (monthly strategy sessions + content reviews) to embedded collaboration (weekly co-working, MLR support, agency management). Every engagement is shaped around your team’s reality, budget, and goals.
Engagements may include:
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- Strategic social guidance and brainstorming
- Agency and content review for creative and compliance alignment
- Patient content systems and short-form frameworks
- Stakeholder-ready decks to support internal buy-in
- Ongoing collaboration to keep work moving consistently
Scopes are shaped collaboratively based on your team size, goals, and internal realities.
Who This Is For
- Rare disease and biotech brand teams
- Marketing or brand leads stretched across multiple priorities
- Teams who need senior-level social media expertise without building an internal department
Who This Is Not For
- Brands looking for a full-service agency to fully outsource social
- Teams seeking high-volume content without strategic oversight
- Organizations not ready for close collaboration
Why Genuine Social
Genuine Social is a healthcare-focused social media consultancy founded by Elise, a senior paid and organic social strategist with deep experience working inside regulated environments.
Our work is grounded in:
Clarity over chaos
Partnership over process
Progress over perfection
We help teams make confident, defensible decisions – and keep moving.
Proven in Regulated Environments
- Launched the first pharma brand partnership on TikTok with open community engagement
- Saw a 170% increase in CTR in Disease Education campaign after adding patient influencer content
- 100M+ video views for disease education content
- Contributor to Gartner Genius Brand pharma social strategy in 2023
Results reflect work led at agencies, and as Genuine Social
Ready to Talk?
If you’re looking for a strategic social partner who understands rare disease realities and can help you move forward – without adding headcount – we should talk.